Learn More2021-03-09 12:00:002021-03-09 13:00:00America/New_YorkPenn Bioethics Seminar Series (PBS): Madison Kilbride, PhD
Ethical Issues in Direct-to-Consumer Genetic Testing: A New Approach to Studying Consumer Experience
Madison Kilbride, PhD, Instructor, Medical Ethics and Health Policy, PSOM
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Direct-to-consumer (DTC) genetic testing companies now offer tests that have significant implications for consumers’ health. Notably, these companies employ a new business model in which tests are advertised to consumers but ordered by licensed physicians. In most cases, these physicians are provided by the company and have no existing relationship with the individual seeking testing. In this talk, I consider some of the ethical concerns raised by this type of testing. I then discuss my NIH grant project, which seeks to evaluate whether the risks identified in my conceptual work are reflected in consumers’ actual experiences with testing.
Please email mary.pham@pennmedicine.upenn.edu to be added to the listserv to receive passwords and announcements.
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Learn More2021-03-15 12:00:002021-03-15 13:00:00America/New_YorkNEW DATE! Research Ethics and Policy Series (REPS) | Raina M. Merchant, MD MSHP FAHA
Digital Media in the Era of
COVID-19
Raina M. Merchant, MD, MSHP, FAHA
Associate Professor of Emergency Medicine, Perelman School of Medicine
Register in advance via Zoom:
https://zoom.us/meeting/register/tJMtce-gqjkjHtO8Om8r-af8o_GTotAv21fo
Social media and other digital platforms that enable connectivity have unprecedented influence and are expanding their reach into healthcare. To date, more than 2.9 billion individuals use social media regularly and many for long stretches of time. These platforms have a singular advantage that healthcare organizations do not have in that they are widely used across broad demographic categories and are nearly ubiquitous in some groups. Perhaps most importantly, they may significantly affect—for better or worse—perceptions, actions, and lifestyle choices. These platforms also may have a role in health care given the recognition that patients seek greater agency in managing, tracking, and having ownership of their health. The use of digital data and tools in the midst of the COVID-19 pandemic has raised interesting questions about ethics, policy, research, and patient experience.
Please contact Mary Pham (mary.pham@pennmedicine.upenn.edu) if you would like to be added to the Medical Ethics events listserv.
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Learn More2021-03-23 12:00:002021-03-23 13:00:00America/New_YorkPenn Bioethics Seminar Series (PBS): Salama S. Freed, PhD
Using a Home Time Measure to Differentiate ACO Performance for their Seriously Ill Populations
Salama S. Freed, PhD, NPC and Duke-Margolis Center for Health Policy Post-doctoral Health Policy Fellow
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Learn More2021-03-30 12:00:002021-03-30 13:00:00America/New_YorkPenn Bioethics Seminar Series (PBS): Nir Eyal, DPhil
Why human challenge trials of COVID-19 are (still) both important and legitimate
Nir Eyal, DPhil, Henry Rutgers Professor of Bioethics, School of Public Health and Philosophy Department and Director, Center for Population-Level Bioethics, Rutgers University
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Learn More2021-04-05 12:00:002021-04-05 13:00:00America/New_YorkResearch Ethics and Policy Series (REPS) | Haresh Kirpalani, MD, MSc and Chris Feudtner, MD, PhD, MPH
The sustained aeration of infant lung RCT: Balancing ethics and the need for evidence
Haresh Kirpalani, MD, MSc
Emeritus Professor CE of Pediatrics, Perelman School of Medicine
Commentary by Chris Feudtner, MD, PhD, MPH
Director of Research, Pediatric Advanced Care Team, CHOP
Register in advance via Zoom:
https://zoom.us/j/91215612903
Please contact Mary Pham (mary.pham@pennmedicine.upenn.edu) if you would like to be added to the Medical Ethics events listserv.
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Learn More2021-04-06 12:00:002021-04-06 13:00:00America/New_YorkPenn Bioethics Seminar Series (PBS): Andrew Gellert, PhD
Disparities in Diagnosed ADRD
Andrew Gellert, PhD, Postdoctoral researcher, Medical Ethics and Health Policy, PSOM
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Learn More2021-04-20 12:00:002021-04-20 13:00:00America/New_YorkPenn Bioethics Seminar Series (PBS): Naomi Scheinerman, PhD
Bioethics and Deliberative Democracy
Naomi Scheinerman, PhD, Fellow in Ethical, Legal, and Social Implications of Genetics and Genomics, Medical Ethics and Health Policy, PSOM
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Learn More2021-04-27 12:00:002021-04-27 13:00:00America/New_YorkPenn Bioethics Seminar Series (PBS): Aliza Narva, JD, MSN
Clinical case: TBA
Aliza Narva, JD, MSN, Director of Ethics at the Hospital of the University of Pennsylvania
Open only to those affiliated with PSOM, HUP, or CHOP.
Registration required: https://zoom.us/meeting/register/tJcvc-uoqT8oHtXwAPiox_sztt5yUEc3Qp7K
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Learn More2021-05-03 12:00:002021-05-03 13:00:00America/New_YorkResearch Ethics and Policy Series (REPS) | Genevieve Kanter, PhD
Financial Conflicts of Interest in Research
Genevieve Kanter, PhD
Assistant Professor of Medicine and Medical Ethics, Perelman School of Medicine
Register in advance via Zoom:
https://zoom.us/j/94075904209
Details forthcoming.
Please contact Mary Pham (mary.pham@pennmedicine.upenn.edu) if you would like to be added to the Medical Ethics events listserv.
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Learn More2021-05-04 12:00:002021-05-04 13:00:00America/New_YorkPenn Bioethics Seminar Series (PBS): Isabel Gabel, PhD
TBA
Isabel Gabel, PhD, Fellow in Ethical, Legal, and Social Implications of Genetics and Genomics, Medical Ethics and Health Policy, PSOM
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