Events
via Zoom
Research Ethics and Policy Series (REPS) | Kim Smith-Whitley, MD
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2021-12-06 12:00:00
2021-12-06 13:00:00
America/New_York
Research Ethics and Policy Series (REPS) | Kim Smith-Whitley, MD
Sickle cell disease: Hope redefined?
Kim Smith-Whitley, MD
Clinical Director, Division of Hematology
Director, Comprehensive Sickle Cell Center, Children's Hospital of Philadelphia
Monday, December 6, 12:00-1:00p Eastern
Via Zoom. Register in advance:
https://upenn.zoom.us/meeting/register/tJwoc-uvpzMrEtA7EjS1qBgGF-2DtDkqThEd
The meeting link will be provided automatically upon registration.
Abstract: Curative therapies are available to patients with sickle cell disease both clinically and experimentally. However, the barriers to “universal” accessibility for all patients are vast. In addition to traditional barriers to novel and experimental therapies, a long history of mistrust, stigma and disparities plagues this marginalized patient population. We will address research ethics and policy issues that may impact patients’ decisions to pursue curative therapies.
For more information, please contact Mary.Pham@pennmedicine.upenn.edu.
via Zoom
Penn Medical Ethics
via Zoom
Penn Bioethics Seminar Series (PBS) | Eric Finkelstein, PhD, MHA
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2021-12-14 12:00:00
2021-12-14 13:00:00
America/New_York
Penn Bioethics Seminar Series (PBS) | Eric Finkelstein, PhD, MHA
Hope, bias, and survival expectations of advanced cancer patients: A cross‐sectional study
Eric Finkelstein, PhD, MHA
Professor of Health Services and Systems Research, Duke-NUS Medical School, Singapore; Executive Director of the Lien Centre for Palliative Care
Tuesday, December 14, 2021, 12:00-1:00p Eastern
Via Zoom. Register in advance:
upenn.zoom.us/meeting/register/tJYofuqtqjovGNa-zZ9NwBaa39JHpgoLrw8Q
The meeting link will be provided automatically upon registration.
Abstract: To be shared.
For more information, please contact Mary.Pham@pennmedicine.upenn.edu.
via Zoom
Penn Medical Ethics
via Zoom
Penn Bioethics Seminar Series (PBS) | LaKisha T. David, PhD
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2021-12-21 12:00:00
2021-12-21 13:00:00
America/New_York
Penn Bioethics Seminar Series (PBS) | LaKisha T. David, PhD
Evolving African Ethnic Identity and Recognizing Relatedness: An Exploration of Identity Development Among African Americans Using Genetic Genealogy to Find African Relatives
LaKisha T. David, PhD
Postdoctoral ELSI Fellow, Medical Ethics and Health Policy, Perelman School of Medicine
Tuesday, December 21, 2021, 12:00-1:00p Eastern
Via Zoom. Register in advance:
https://upenn.zoom.us/meeting/register/tJYsfu6vrTkvEtQrNrurcKci52ebGP6gUMVQ
The meeting link will be provided automatically upon registration.
Abstract: African Americans are using genetic genealogy to go beyond the vague estimates of ancestral ethnicities to identify African genetic matches. An African and African American genetic match engaging with one another as relatives presents an emerging situation that challenges our understanding of family identity and ethnic identity. While relatives from Africa share knowledge about their family history and ethnicity with African American genetic relatives, African Americans have new agents of socialization and new information to inform their family identity and ethnic identity. This study uses grounded theory methods to develop a substantial theory on family identity development and ethnic identity development among African Americans who engaged in social interactions with their African genetic relatives. Examining the collective experiences of the participants of this study, participants felt (1) a sense of lack in African ancestral history and (2) an evolving African ethnic identity while (3) recognizing relatedness, and (4) managing many emotions associated with the experience. New family forms are taking shape through emerging African transnational families inclusive of African Americans from the use of genetic genealogy which provides a new social context for family identity development and ethnic identity development for African American adults.
For more information, please contact Mary.Pham@pennmedicine.upenn.edu.
via Zoom
Penn Medical Ethics