December
6

Research Ethics and Policy Series (REPS) | Kim Smith-Whitley, MD

12:00pm - 1:00pm • via Zoom

2021-12-06 12:00:00 2021-12-06 13:00:00 America/New_York Research Ethics and Policy Series (REPS) | Kim Smith-Whitley, MD Sickle cell disease: Hope redefined?   Kim Smith-Whitley, MD Clinical Director, Division of Hematology Director, Comprehensive Sickle Cell Center, Children's Hospital of Philadelphia Monday, December 6, 12:00-1:00p Eastern Via Zoom. Register in advance:  https://upenn.zoom.us/meeting/register/tJwoc-uvpzMrEtA7EjS1qBgGF-2DtDkqThEd The meeting link will be provided automatically upon registration. Abstract: Curative therapies are available to patients with sickle cell disease both clinically and experimentally.  However, the barriers to “universal” accessibility for all patients are vast.  In addition to traditional barriers to novel and experimental therapies, a long history of mistrust, stigma and disparities plagues this marginalized patient population.  We will address research ethics and policy issues that may impact patients’ decisions to pursue curative therapies.  For more information, please contact Mary.Pham@pennmedicine.upenn.edu. via Zoom Penn Medical Ethics

Sickle cell disease: Hope redefined?

 

Kim Smith-Whitley, MD
Clinical Director, Division of Hematology
Director, Comprehensive Sickle Cell Center, Children's Hospital of Philadelphia

Monday, December 6, 12:00-1:00p Eastern
Via Zoom. Register in advance: 
https://upenn.zoom.us/meeting/register/tJwoc-uvpzMrEtA7EjS1qBgGF-2DtDkqThEd
The meeting link will be provided automatically upon registration.

Abstract: Curative therapies are available to patients with sickle cell disease both clinically and experimentally.  However, the barriers to “universal” accessibility for all patients are vast.  In addition to traditional barriers to novel and experimental therapies, a long history of mistrust, stigma and disparities plagues this marginalized patient population.  We will address research ethics and policy issues that may impact patients’ decisions to pursue curative therapies. 

For more information, please contact Mary.Pham@pennmedicine.upenn.edu.

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