Penn Bioethics Seminar Series (PBS): Madison Kilbride, PhD

Ethical Issues in Direct-to-Consumer Genetic Testing: A New Approach to Studying Consumer Experience 

Madison Kilbride, PhD, Instructor, Medical Ethics and Health Policy, PSOM 

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Direct-to-consumer (DTC) genetic testing companies now offer tests that have significant implications for consumers’ health. Notably, these companies employ a new business model in which tests are advertised to consumers but ordered by licensed physicians. In most cases, these physicians are provided by the company and have no existing relationship with the individual seeking testing. In this talk, I consider some of the ethical concerns raised by this type of testing. I then discuss my NIH grant project, which seeks to evaluate whether the risks identified in my conceptual work are reflected in consumers’ actual experiences with testing.


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